One in seven people in England who need hospital care do not get the treatment they need because the referral by their GP is misplaced, declined, or held up, a patient advocacy body has found.
A staggering 75% of these patients caught in this “referral void” face worsening conditions to their well-being as a direct outcome of not being added the waiting list for tests or treatment.
Updates for patients is so unreliable that seven in ten (70%) of those caught in the situation discover they have failed to be placed on a waiting list only when they pursue the NHS as they have not been told that a delay has taken place.
“Behind every delayed, lost or rejected referral is a personal account of pain, stress and uncertainty,” stated an official from the monitoring body.
The study determined that one in seven patient transfers are getting “stuck” between GPs and hospitals, causing people uninformed, and filled with worry about their appointment date.
“While improvements have been made, too many people are still caught in this referral ‘void’, telling us that they’re ‘existing not living’ due to these hold-ups,” added the official.
The chief of a separate patient group described the findings as “deeply alarming” and noted that delays to referrals can cause certain individuals fearful of exiting their home.
“If 70% of people only find out their referral did not proceed because they took the initiative to inquire themselves, the system is fundamentally flawed,” the official added.
The survey also highlighted that just over half (53%) of everyone who is referred pursues additional healthcare while they await the NHS to process it.
“These results suggest that processing hold-ups may create additional demand on other NHS services,” the analysis commented.
One patient – Patrick – recounted how he had been awaiting an appointment for months to see a consultant about persistent discomfort in his joints.
“Upon calling they were courteous but they could not provide any concrete timeline. The wait might be as long as a year before I am seen, and that’s just to take the opening phase in a long process,” he stated.
“My experience is that I’m in a state of suspension,” he concluded.
The 14% of people whose referral gets lost does represent progress on the higher rate who were experiencing the same fate when an earlier investigation was undertaken in 2023.
Since then, government officials and NHS leaders have taken steps to resolve this by creating tools for patients to track the progress of their referral via digital applications.
“Although improvements have been made, many patients still state that poor communication, bottlenecks and ambiguity caused by extended waiting times are affecting their physical condition, mental state, and employment,” the organisation stated.
A government spokesperson commented that the situation highlighted by the research “is not acceptable”.
They added that progress has been achieved since the research was done in March.
“We have been clear that this is a long-term process to improve the NHS but we are starting to see progress. Considerable effort is still required but we are beginning to see the green shoots of positive change,” the spokesperson concluded.
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